Tuesday, January 26, 2010

The First Opinion

After being told that we may have to wait a year for Noah to be assessed at the Autism Center, we decided to see if we could get Noah in somewhere else quicker. The only other real option was Akron Children's Hospital. The problem with Akron was that they weren't in our network. We decided that if we had to, we would just pay in cash. (We didn't know about BCMH at the time, but found out at the appointment. Luckily, BCMH paid for the visit.) We called Akron and found out that Noah may be able to get an appointment in just a couple months. We filled out all the paperwork and mailed it back. They called shortly after and set his appointment for October 20. Finally, we were going to find out what was wrong with Noah.

On October 20th, we headed up to Akron. His appointment was with a developmental pediatrician. She was really nice. We brought tons of info with us. Videos of Noah, copies of test results, evaluations. She looked over all the test results from Dr. H and all the other paperwork. She asked us some questions. She observed Noah and watched the video footage. She performed the M-CHAT and CARS evaluations on him. After she was done, she looked at us and said, "He has autism. Continue speech and occupational therapy. I'll refer you to the feeding clinic and schedule an MRI becaus of the hypotonia. Bring him back in 3 months. There really isn't anything else to do until he turns 3. Then we can look at other therapies" Wow! She also mentioned things like PECS and communication devices...etc. Okay, this appointment left me feeling a little overwhelmed and underwhelmed at the same time. I was glad we had a diagnosis, but I felt kind of let down. I guess I expected some ideas for helping Noah with his behavior or maybe some more detailed information as to where he was developmentally. I don't know. Maybe I wa asking too much.

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